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Preschool & Prosecco March 21, 2016

Published by Preschool & Prosecco

A blog for the every day. My random thoughts on life, basic & delicious recipes, super cute crafts, and handy tips that everybody can achieve. If I can do it, ANYBODY can! View all posts by Preschool & Prosecco

Published March 21, 2016

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preschoolandprosecco

Mom 👦🏼 | wife 👰🏻| blogger📝 | 🌴30A☀️ | lover of all things 🍷, ☕️, and Andy Cohen ❤️ For collabs, email me at prekandprosecco@gmail.com

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This silly, brave, strong, smart, wonderful boy is 7 today!! 🎁🎉🎈
📸 @shellyswangerphotography *
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#thisis7 #watercolorfl #birthdayboy #boymom #30a #momlife #southwalton #happybirthday #kidsofinstagram #floridakid

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Earlier this week, we found out the results of Hayden’s genetics testing. He has a very rare genetic disorder called Lowe Syndrome. It is caused by his OCRL gene not working and totally explains all the issues he has had with his eyes, muscles, and development. There are only about 1,500 to 2,000 cases in the US. 🧬🔭🩺 *
Based on our limited research, he seems like he has a very “mild” case of it, which we are thankful for. It’s not degenerative and because he’s made such great progress so far, all clues point to him continuing to improve. We still have lots of questions and we have a follow up appointment in January. We are also getting his kidneys looked at just to make sure they are functioning correctly. He may complications later in life, but now that we know what to watch for, we can catch potential issues early. I’m going to have the same testing done to see if he inherited It from me, or if he’s a first generation carrier. *
It was really scary news at first and we aren’t sure what this means for his future, but after having time to process, we both feel a sense of freedom in his diagnosis. It has taken the pressure off our shoulders of wondering if we’re coddling him too much and has made it easier to just let Hayden be Hayden. ❤️👦🏼
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#lowesyndrome #specialneedskiddo #raredisease #specialneedsfamily #specialneedsmom #lowesyndromeawareness #lowesyndromeboys #momsohard #specialneedsparenting #destin30amama

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Decade challenge time! 2009 ➡️2019. What a change! I’m thinking it’s time to go brunette again 🤔🤔
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#whatababy #decadechallenge #destin30amama #sowal #momsohard #2009vs2019 #transformation #changeisgood #selfimprovement #positivevibes

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I had Thanksgiving lunch with this little 🦃 at school today. It’s hit or miss with this kind of stuff for him, but he had a blast today! 👏🏻❤️👦🏼
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#momlife #thisis6 #thanksgivingfun #specialneedsmom #waltoncountyfl #sahmlife #specialneeds #specialneedskids #specialneedsparenting #happythanksgiving #motherhoodunplugged #specialneedsparent #boymom #momblogger #specialneedsfamilies #momlifebelike #momjourney #momlifeisthebestlife #fallfun

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Hayden loves reading to his friend Katie! His reading continues to improve thanks to his teachers and the awesome R.E.A.D. Program that comes to his classroom each week. 🐩📚👦🏼
@intermountain.therapy.animals *
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#thisis6 #specialneedskiddo #destin30amama #30a #freeportfl #sowal #learningtoread #santarosabeach #therapydog #READprogram #destin30amoms #momsohard #boymom #destin30amomsblog #specialneeds #specialneedsfamily #specialneedsmom #therapydogs #readtoadog #6yearsold #specialneedsparenting #readtoyourchildren #childrenlearning #specialeducation #iep

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Happy birthday to this stud @driftwoodguitars! Hope you feel as special today as you make us feel all year long. We love you! 🎁🎉🍰
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📸: @shellyswangerphotography
#happybirthday #birthdayboy #officiallyold #driftwoodguitars #shellyswanger #luthier #30a #shellyswangerphotography #santarosabeach #southwalton #chrisalvarado #celebration #proudofyou #instadaily #familylife #goodtimes #instamoment #80sbaby #myhusband #whatagoofball

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Need some shopping inspo??? My latest post on SoWal.com lists ALL the holiday markets happening in and around SoWal starting as early as this weekend! 🛍🎁🎄
📸: @tomollyplusone @mooncreekphoto
@sowalbeaches *
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#holidayshoppingseason #holidaymarkets #livelikealocal #freelancewriter #sowal #shoplocal #30a #shopsmall #happyholidays #holidayshopping #emeraldcoast #hey30a #freelancelife #beachlife #graytonbeach #writersofinstagram #santarosabeach #shophandmade #holidayshoppingtime #christmasshoppingtime #destin30amama #destin30amomsblog #southwalton #locallove #boymom #destin30a

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We had a family day at Rocky Bayou State Park for Pioneer Day! 👨🏻‍🌾🏕🍁
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His favorite part by a LONG shot was the trolley ride from the car. He loves 🚂 so once we convinced him it was like a train, he was sold. *
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#rockybayoustatepark #destin30amama #pioneerday #floridaboy #familyfieldtrip #floridainthefall #destin30amoms #momsohard #emeraldcoast #momlife #familytime #floridastateparks #niceville #fallinflorida #nicevillefl #spendingtimewithfamily #familyfuntime #FloridaStateParks #okaloosacountyfl

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It’s been a rough couple of weeks around here. We are working through some behavior issues and without a firm diagnosis we are working with very limited info.
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Hopefully, we’ll hear back on his genetics testing soon so we know what our next steps are. 🩺🔬🧬
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It’s unbelievably frustrating and disheartening and we’ve had days that end up with all three of us in tears 🧐🤔🤬 *
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This kiddo is our whole world and through it all, he keeps showing us how much he’s learning and growing every day ❤️👨‍👩‍👦
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📸: @shellyswangerphotography
#destin30amama #boymom #30a #specialneedsfamily #momlife #sowal #santarosabeach #hey30a #destin30amoms #specialneeds #shellyswanger #momsohard #southwalton #shellyswangerphotography #destin30a #destin30amomsblog #locallove #momblogger #specialneedskids #familytime #specialneedsmom #specialneedsparent #boymomlife #momsofinstagram #motherhoodunplugged #momstyle #myboys #diagnosisprocess #watercolorfl

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Every Tuesday, @neatbottleshop hosts a Wine & Song event. I recently went with the @sowalbeaches team to check it out and it was fabulous! Click the link in my bio for more info about Neat in @alysbeachfl . The tourists are gone and it’s time for the locals to come out to play!
📸: @mooncreekphoto - Molly Parker 🍷🎤🧀
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#freelancewriter #30a #sowal #alysbeach #locallove #localblogger #southwalton #beachlife #graytonbeach #santarosabeach #hey30a #freelancer #visitflorida #southwaltongetaway #alysbeach⁠ #localbusiness #SoWal #supportlocal #winebar #floridablogger #destin30amama

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Anybody else’s Monday making them feel a little topsy turvy? 🤸🏻‍♂️👦🏼😂
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📸: @shellyswangerphotography
#thisis6 #30a #watercolorfl #southwalton #sowal #shellyswangerphotography #santarosabeach #kidsofig #boymom #momlife #trusttheprocess #30akids #destin30amama #6yearsold #familylife #photoshoot #30ababy #letthembelittle #manicmonday #Mondaymadness #Mondaymood

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This little Bubble Guppy had his best Halloween yet!!! He picked out his costume, actually wore the mask (I was 😮), and trick or treated!! 🎃🍬🍫 We are so proud of our guy!
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#happyhalloween #thisis6 #milestones #bubbleguppy #trickortreater #specialneeds #trickortreat #halloweencostume #halloween2019 #specialneedsfamily #specialneedsparenting #firstgrade #bubbleguppygil #trickortreating #halloweenvibes #candykid #floridafall #fallinflorida #specialneedskiddo

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