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Preschool & Prosecco

The real life of an actual housewife

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June 3, 2017 Leave a Comment

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April 1 was the 11th anniversary of our first date. Any guesses who’s still telling the funniest jokes? 📆❤️👫🏻

We went to a birthday party at @usgoldgymnastics and this kid had the time of his life!! For a while, he was totally happy and giggly watching the other kids, but he finally worked up the courage to get involved! We never would have been able to do that a few months ago and we are so grateful that with his new meds, he’s able to participate in the ways that he wants to. He was one happy, sleepy kiddo at bedtime but I could tell how proud he was of himself 🥰💪🏻🏆

👋🏻👋🏻In honor of Rare Disease Day, I wanted to share a bit about Hayden’s condition. In 2019, he was diagnosed with Lowe Syndrome, a genetic disorder that occurs in only one in 500,000 boys and affects the eyes, brain, and kidneys. 🧬🧫🔬

I had somebody message me earlier and I realized I haven’t posted a Hayden update since our last terrible-horrible-no-good-very-bad-day(sssss).

Today was hard. Days have been hard more often than not lately. Hayden’s behavior has gotten progressively worse this past year, and especially since school started.

🌟🌟Have you seen the latest products from the @driftwoodguitars shop?

Preschool & Prosecco

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